Oh okay sorry I don't know why I assumed cancer. Anyways still, it doesn't matter one way or the other, she was obviously an inspiration! I am really interested in orphan diseases, as well as rare genetic abnormalities actually, because I have an extremely rare (but completely benign) deformity of my fingers. It's a genetic birth defect. I think the stats are like 1 in 50 million people are born with *some* of their fingers deformed in this manner, and even fewer than that have all deformed fingers. Mine are all deformed, and I've visited teaching hospitals several times during my life, so interns and new doctors can have the opportunity to look at my fingers lol. There's even a picture of my fingers in the international medical database. My fingers are really ugly IMO, I'm always trying to hide my hands when I meet people. But I am an artist so obviously the fingers aren't causing me any real harm.

Anyways I haven't heard about the disease your sister had but I'm really curious now so I will definitely do some research on it!