Yup I totally understand that! It's hard. But it is very comforting to know that there are others in my situation, who have this severely and realize it's never going to be completely "cured". I get really sick of people saying they are symptom-free or that there is a cure. Sometimes I wonder if those people have the same illness as me??? It just gets old after a while, and it makes me feel bad, I feel judged to be honest. Like I'm somehow being negative. But I am NOT being negative... just realistic!! I am confident I will have a good life and be able to do lots of things. But I will never be completely symptom free. In my case, that's a fantasy.