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Old 26-04-2008, 04:33 AM
Murphy's Law Murphy's Law is offline Gender Female
 
Join Date: Mar 2008
Location: NB Canada
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Default Extreme Phantom Pain and night terrors

First, I have been told by my pain specialist that memory and cognative problems can be caused by PTSD, the meds I have to take, or the extra daily stresses. I have just had to come to terms with the fact that I cant remember a thing and carry a notebook and mini recorder all the time. Happily he also told me when I am off the meds, less stressed, it would probably get better.

I do struggle with phantom pain, and it seems to worsen at night. With that comes alot of sharp pains, burning sensations and pressure pains, even in other parts of my body. I am mostly able to control it to a livable level through working with my T, and meds. I also struggle with knowing what is an acepptable amount of pain. I have had many surgeries and get aches and cramps to an unbearable levels.

I also struggle with night terrors. I wake up drenched in sweat, panting for breath. Heart beating, super confused. And when these happen, of course it triggers pain everywhere. from muscle tension.

I have extreme nausea and other gi things I am sure no one wants to hear. have lost 80 lbs since pre trauma.

One side effect that has terrified me is when my breathing is affected. It has happened twice to me that I stopped breathing. Once from a med, and once after for no apparent reason. started feeling like I was drowning, became very difficult to breath, and when I passed out, my nervous sytem didnt reset. No one has definite answers to that, just that some switch in my brain or spinal cord is now permenently on, causing weird things to happen in my sympathetic nervous system. Have also had my leg jsut go numb, and its not ms. still trying to find answers on this one, if anyone else has seen it?

I think most of my symptoms are significantly higgher when I am coping less well with stress. When I have less control around me, I find the uncontrolable things harder to deal. I know in the good cycles, these symptoms are significantly less. Its just hard to remember what you were doing so right when you are doing every thing so wrong.
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