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FlyLadyFan
13-11-2007, 06:56 AM
I'm 4.5 years out from my trauma and 3.5 years out from my worst breakdown point, yet I barely function.

I occasionally have a good day when I get done what I think most people do in half a day, or what I pre-trauma could do in half a day.

I cannot work or do anything that has a "deadline" ... the pressure of even committing to be at, for example, my church Christmas dinner on a certain date is something I have to struggle with. But lately I have been managing to get my kids to their gym and skating lessons pretty well.

But I cannot prepare meals regularly or get into any housekeeping routine at all. I only go to the grocery store about once a month because I keep trying to make a list but never do and then finally I go because we're desperate so I buy what's on sale and go home with no meal plans at all ... just a bunch of odd stuff.

And I'm NOT trying to say I'm worse off than anyone else on this board .... but I read where many/most ?? of you work and/or go to school and seem to function out in the world somehow and maybe even at home. I don't function very well anywhere at all.

Am I just sicker than I want to think I am and should stop feeling this constant guilt for never getting things done or organized and being unreliable and unable to commit because I know I probably won't follow through??

Is it me in a rut of habit from ptsd?? Or is it actually ptsd?? I was never a slacker before my trauma.

I know this sounds rambling and confused, but that's my current state. Sorry.

FLF

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She Cat
13-11-2007, 07:06 AM
I don't know why some of us can work, while other can't. For me... I didn't have the choice. I had to work, so I did. I am grateful that I can. It's my escape. If I couldn't work... I don't know.

You on the other hand, are where you are. You do what you can, when you can. Are you sicker than others???? I don't know. All I know is that all of us do what WE can at any given time, and leave the rest for later.

All I can say is do what you can, when you can...Try to push yourself a little. It sometimes helps to get out of your comfort zone for a little bit. Feels crappy, but it does help.

FlyLadyFan
13-11-2007, 07:13 AM
Thanks for replying.

I guess I'm looking for a way to feel less guilty about how much I cannot/do not do. I think maybe the energy of the guilt-cycle in my mind adds to the robbing me of energy for actually doing things ... like a vicious circle. See what I mean?

I do what I can, when I can, and THAT feels like I'm pushing myself. Just leaving my bedroom is leaving my comfort zone. Sometimes it helps, but if I keep it up for too long ... like having several "productive" days in a row ... there is a major price to pay by having several completely incapacitated days in order to "regroup".

I'm so tired of this tiring treadmill of inactivity and guilt. But it's been a few years ... shouldn't I be doing better than this by now ... WILL I ever be doing better than this?? OMG! What if this is IT as far as recovery??

:wall:

FLF

.

veiled
13-11-2007, 08:05 AM
We all have those days of please tell me this is not as good as it gets. Yes, I sit in amazement at how much others can do. They go do things. I cannot work, if I "had no choice" I would be living under a bridge, simple as that.

A few very far and few between days I have made it to the store with my husband not leaving my side, and have even driven to the lake. One very long country road with no turns. I tried to pick my son up from school for a week, and I got too sick. MIL brings him home and hubby drops him off.

I love to cook but sometimes I can't. Hubs picks up slack or we have easy to make meals. Emotional and mental turmoil can wear us out a great deal, it is not laziness.

batgirl
13-11-2007, 08:18 AM
FLF, I can't speak for you specifically but I do know that some people have more severe symptoms than others. For me, I was diagnosed on the severest end of the scale in every category of diagnostic criteria. I have never been able to hold down a "normal" job for more than a few days. The only kind of work I have been capable of up to this point is something that I may do from my home with no pressure or deadlines. And right now I can't even do that. I can go for days being immobilized and unable to do much at all. In my case it's not a matter of laziness, I am simply too phobic to do certain things regularly; it takes too much emotional and physical energy. If I pushed myself too hard I would get very ill, very quickly. That's not to say I don't ever try to improve, but from previous bad experience I know to go slow and not push myself too hard.

Even when I was living on my own (I live with my family now) and needed the money to live, I still could not work. It was definitely not a matter of choice for me. When I didn't have money, I ended up in a homeless shelter for a few weeks. There I was assisted to apply for welfare. Without the existence of welfare or disability I likely would have ended up on the streets.

You aren't lazy. You wouldn't call yourself lazy if you had cancer and couldn't accomplish things. PTSD is an illness too, and it effects our abilities to accomplish everyday tasks. I understand the feeling of "is this as good as it gets" too. I get that every so often, I wish I could be better than I am and able to do some of the things others can.

FlyLadyFan
13-11-2007, 09:38 AM
Thanks for replying, veiled and batgirl.

Your posts actually make me feel a little better. Maybe I don't read enough of the forum to find where people mention they are years out from the trauma and still so incapacitated. I get the sense most people who are out of work are closer in time to the event(s) and in the earlier stages of "recovery". But I could be wrong because my swiss cheese memory doesn't hold onto who's doing what when.

You made me feel not quite so alone. Thank you.

FLF

.

splost76
13-11-2007, 01:34 PM
FLF,
I know how you feel, it took me quite some time a while back ago to do just about anything, and there are still times when this will come back to haunt me. Just a couple months ago, I had a sort of relapse and struggled majorly with just taking the trash out at night, ( I am terrified of darkness, not used to this still). So yes some of us do get out, but for some of this we either have to or through time have just learned how to manage with this.
splost

cactus_jack
13-11-2007, 02:13 PM
I think you have emotional fatigue. Very real as you can see, and it will affect you physically and mentally.

ruddy
14-11-2007, 01:16 AM
My personal experience is that the emotional fatigue is brought on by anxiety and panic attacks. Anxiety makes it difficult to concentrate on what I need to do. Panic attacks drain me physically and emotionally to the point of being completely dysfunctional (useless) for a period of time afterward. I am able to work, but I don't think those who can't are lazy; I think they have more severe symptoms.

becvan
14-11-2007, 01:19 AM
As with all things, PTSD has a range of symptoms. Some people are mild, some moderate and some severe with PTSD. We will all vary within that range. I have the severe end. I have no choice but to not work. I was faced with starving to death and living in a paper box and I still had no choice there. It was not work or croak from the stress. This is not laziness. This is part of PTSD. Some of us just have no choice over the work thing.

Don't beat yourself up over this. Learn what your limits are. You can not compare them to another person with PTSD as we all vary with our range and severity of symptoms and you will just beat yourself up over it.

bec

baileysemt
14-11-2007, 08:08 PM
Flylady, one thing I have learned from my time here is that each of us is unique. Yes, there is a "scale" of symptoms that we might experience, but each of us is different in how the core problem (PTSD) will affect us.

Think of it this way: will a single dress fit exactly the same way on two different women? No, of course not. It is the same dress, but their figures are different, so the fabric will pull in some places on one woman, and lay loose in spots on the other. PTSD is the same way. The parts that pull tightly on you, may lay loosely on someone else. It's still PTSD. It's just a question of how your brain and body "wears" it.

You and I sound very similar. I am also not able to hold a job. I have tried and I end up just like becvan. Also, as described above, if I have a series of 2-3 really good/productive days (which are average by the pre-trauma standards, but I'm not that girl anymore) it just sucks the tar right outta me, and I need 5-6 days to rest and regroup. Literally 3 days of that is in bed, sheer exhaustion, sleeping, feeling like a dead weight, zero oomph, zero drive. The ceiling could cave in and I couldn't care less.

But this is a step up from having NO productive days. What a great accomplishment that is -- another milestone achieved! Productive days! Wahoo!! I have been working hard to grab hold of those days when they arrive and RUN with them. Heaven only knows how long they'll last, how soon I will be forced back under my rock... :)

As for this "I have no choice but to work" discussion... I don't think we are ever going to resolve this between us. Those who have found they are able to work, believe they do so because they have to. I understand that their perception of having "no choice" is what drives them through their hurdles. I perceive that as being able to... they have a capability to work through their demons (or set them aside, or whatever) and go to their job and do what they are paid to do. I think that is phenomenal and I am so glad for them that they have that strength and ability. They are so blessed!!!

I have tried to do what they do. I have tried desperately. I too have bills to pay and no alternative but to pay them. That "inspiration" does not work to break down my "roadblocks" and make it possible for me to work. I wish it would!! Instead I go into terrible flashbacks and suffocating meltdowns. By day three working, I am a basket case, quivering, shaking, terrified, wadded up in a ball in bed, crying, charred people and gored-out house pets flying through my head... I can not work a traditional outside-the-home job.

I am behind on my bills like nobody's business. I am lucky, the ONLY reason I haven't landed in the street on my butt is an exceedingly accommodating landlord. I am getting better able to cover my rent in a timely way (through part-time work at home) and as I get better, I know that I will be able to pay more and more bills. I'm doing all I can though, so some things are just falling further behind. If it comes to the point where the cut the electric then I guess I will have to move out. I know what I cannot do. I know what my limits are. I don't print the money myself; I can't just invent it and I am not superhuman enough to just bust right through my worst triggers.

Everything you describe, flylady, are things I have felt or experienced. They are normal PTSD symptoms. Please do not feel weird or unusual. You are NOT lazy or incapable or any of those other malicious and UNDESERVED labels we are so fond of tagging on ourselves. You are a woman of good work ethic. You are a woman of good stature. You are putting your all into getting through this moment as best you can... and the next, and the next. You can only do your best. If you felt better, you would be up and bouncing around and loving it!!


Maybe this will help. In NASCAR racing, in post-race interviews, the drivers will get out of their race cars and say things like, "we had a 15th place car today." A winning race car is a rarity. A race car is never perfect-handling all the time. Race cars always have problems. They chatter the front tires in some turns, they fishtail out of others, they come down too hard on the right tires at times and that makes the tires wear unevenly. The crews have to keep adjusting the dozens of levers and springs and things they can change, and the drivers have to keep adjusting their driving style to try to find where the car performs the best. But at the end of all of that, they might still only have a 15th place car.

Sometimes we are only 15th place cars. Some days, we are a 30th place car. Some days we have to retire from the race early, in last place, pack the car in the semi and go home. (Those are the days we can't get out of bed, LOL)

The point of this is to encourage you to embrace the best of what you've got. Some days are going to be great days, and other days are going to suck. This is PTSD. If you've only got a 20th place racecar, be happy if you can actually finish in 20th place with that car. 20th is way better than finishing last. :) And in that case, finishing 20th with that 20th place race car means that you achieved your full potential of what you were dealt -- which is awesome!!!! THAT is an accomplishment!

And lest you think that I have all the answers for this or anything (NOT!) please rest assured that I will be back to re-read my own words when I am having a bad day. I totally lose sight of these things on bad days. That's not unusual either. Try to be patient with yourself. You will heal, but it is slow. And remember that not every win is a 1st place finish. Sometimes it is a matter of just accepting the capabilities of your car and doing what you can with it. :)

For those who don't get into racing ........ sorry.

:D Bailey

veiled
14-11-2007, 08:41 PM
Damn, you could not put it better. Must be why I yanked moderation off you after that read, could not pull you out quick enough reading that. Wonderful posting and a good read for us used to being here. Welcome aboard, Bailey.

splost76
15-11-2007, 01:07 AM
Bailey, That was awesome, very inspired, and glad to have you on board with the rest of us. Shane

She Cat
15-11-2007, 07:19 AM
Great post!!!!!

vst
19-11-2007, 12:57 AM
Bailey, your post was magnificent. Thank you!!

vst

pandora
19-11-2007, 04:18 AM
Hi Bailey....I too, have thought that I was lazy, at times. Having family members say it just took me longer to realize that this is something, I....truly am not. We have a disorder that makes it hard to function sometimes but we have to learn how to manage the symptoms.

I was a workaholic to cope. I somehow functioned very well and put myself through nursing school and have been in supervisors positions. Today, I no longer wrok (after 10 years full time and 4 years of school) Today...having a shower, making the beds, doing the dishes is an accomplishment. Now, I pat myself on the back for most things I do. i finally forgave myself for having this illness...I know it is not my fault. I try to have a small list of things that need to be done and I have to PUSH myself to do all of it but I do it. It helps to reward yourself for even the smallest things...it has helped me.
Please take care.

txmomof3
19-11-2007, 02:31 PM
Pandora- Reading your post made me feel just a little better. I coped with my trauma by putting myself through nursing school, working, putting myself through grad school, teaching nursing school...then the bottom fell out.
I used to be able to do SO much...and now I can't even fathom how I did it all. I feel like I used 50 years of energy in 10, but I still have to keep going. After working as a nurse for so long, there are days I do feel downright lazy. All three kids are school-aged and I don't work anymore.
I am trying to get to the point of accepting my limitations...but I am not so good at that.

Lisa
20-11-2007, 02:59 AM
Wow this has been good for me to read today. Flylady... and everyone else who has similar issues with inactivity... I am the same. Especially right now. Over the years, I have had periods where it has been better, and periods when it's been so awful. I never feel I am at the 'full speed' I want to be at. I have to constantly re-jig my 'lists' of things to do, sometimes to just one thing, sometimes to five things a day... because it totally depends on the day for me. And it's important not to put too much on your list to do, if you set goals too high.. because then you will just fail and feel worse, or do even less than you probably could.

When I have tried to do as much as I WANT to do rather than what I know I CAN do, I have either miserably failed, or ended up really suffering for it. Deadlines are a nightmare for me too... and as a student this is not good! All through my 2nd year, and now again in my 3rd year, I have had to have extensions and special accommodations, and even with those it has been REALLY hard. Because I just never know when I'm going to be able to do the work I need to do, and how long for. For years I thought it was laziness, self-discipline issues... but I'm now being told not to be so hard on myself. Now I know I have PTSD, it is easier to cut myself some slack. I used to get myself into right states, thinking I was just lazy, then I'd hate myself etc. But I know that I'm not lazy... because I WANT to do more! I WANT to function better! If I had my way, I'd be manic and doing 4 things at once all day long... but that's unreasonable. Even 'normal' amounts are unreasonable to me... because before I get out of bed, my cup is already nearly full with PTSD crap.

So when I get a productive day, I take FULL advantage. Because I live with the uncertainty and a sense of lack of control over my own productivity. The funny this is... I am a perfectionist. I am organised, usually motivated, and everything that a 'productive person' should be...just without the production sometimes/often! The killer for me is to get the most out of myself I have to keep myself in a very predictable, constant environment where my only problem is my mind. Then I can deal with enough to get what I need out of myself. It then has a positive impact on me, I start to want to socialise more, and I get better at actually planning my days and doing them. Much like my earlier childhood... i was a little obsessive over schedules.

The problem with this is... it only works enough when my only stress is Post Traumatic Stress Disorder. When I only have PTSD to deal with I still have bad periods and good periods, but they are not as long and enduring. But life doesn't work like that... if I get too much other stress, especially other personal or traumatic stress... I'm left incapable to function on any normal scale, and I simply can't seem to get on with what I need to do. And worse than that, the turmoil can go on for days/weeks/months and I don't know how long. At the moment, I am in your boat with this, and my degree is hanging in the balance (again). So you are not alone. I cannot even plan ahead more than a few days socially, because I don't know if on that day what state I will be in and if it will be one of those days where it is not a good idea to try to go out and be sociable and entertaining.

As for working... I have had some problems too with that. I'm only 22, and have been studying most of my life, and luckily that's okay as I have accommodation and loans in order to study. Once I've done my degree, if I can't manage working, I'm in the shit. In the past, even part time jobs were a problem to me at times... there were only two jobs I have ever had that worked for me, one part time, and the other full time for 5 months before I started uni. and I suspect that was because those times were better periods for me. I would start a job, and leave within weeks. Crash, then try another job. The only job that worked for me was one where I had deadlines, but the work environment left me to my own devices without someone standing over my shoulder all the time.

Are we lazy? No. I spend SO much time and energy TRYING to concentrate, TRYING to do what I have planned to do. Sometimes it can take me HOURS to muster up the courage to do a simple household task. Just because productivity is not happening, it doesn't mean that you are lazy... just that you have a lot of PTSD energy and emotion using up your mental and physical energy. Without stress (and PTSD is post traumatic stress), all that energy would be used externally. At the moment, all your energy is going internally because PTSD is using it up.

I cannot remember the last time I had a "lazy day"... by that I mean, watching a mindless film, slouching about and doing nothing. However, at the moment I spend days on end in my room doing nothing. But my mind is constantly thinking... my body and emotions are constantly doing something. Even when I'm sleeping. If I was lazy, I would be enjoying this right? Except I spend all day trying and failing, and worrying, and sometimes self-hating, and feeling awful. I try to take each day as it comes, and do as much as I can. I still push myself... but it takes understanding that sometimes doing very little IS pushing you, because otherwise you would do nothing at all.

I do think concentration and activity in whatever form is like a muscle, and needs to be exercised and built up, even if it is starting with just 5 minutes reading. But you also have to take into account that PTSD is fluid - some days are better than others, and some days it is just not going to happen. But some days, there is more room to do more. To be diagnosed with PTSD, you have to have impaired functioning on different levels, socially etc. That is part of PTSD, and why it is a disorder. So the bottom line is as you try to work through your trauma, and PTSD starts to gets better, everything else will too.

baileysemt
20-11-2007, 04:25 PM
Wow Lisa, I swear you must have installed some spycams in my apartment. :) LOL !!! You have described my life to a "T". Spending days on end in my room, in bed, doing nothing, but my mind is non-stop and I am exhausted. Or spending hours (days???) mustering up the courage to do a simple household task, UGH!! Good thing you cannot see my home. :eek: I took out 2 bags of garbage yesterday, I was sooooo proud of myself !!! (And the other 70% of me says, 'it's about time, what took you so long, was it really THAT hard?' *sigh* The self-criticism never ends.)

What frustrates me most is how "normal" people just DO NOT understand this. I am battling a wholesale supplier right now that is refusing my business because my PTSD has caused a few customer service issues with my business. Well, I was closed for a few months. Just flat-out closed, because I couldn't deal with it AT ALL. They don't get that. I am doing better now so I have re-opened for 4th quarter (and I am in contact with all customers now, have sent out a whole passel of orders and am resolving everything that had come up), but they have shut me off. They are my top supplier and their product is one-of-a-kind, very much so... I can't just get it from someone else, there is no one else. :( What do I do???? It is hard enough not judging myself, but when I have outsiders behaving boorishly about my illness, gosh how do you answer that?!

:dontknow:

It ain't a fun ride, that's for sure.

:) Bailey